Today One Month after my daugther passed away, My wife and I still missing her. We are still recovering from the sadness. So i would like to dedicate this song for those in same situation like us. This song is very thouching.
2 years old girl had HLH disease in Malaysia. She was treated under HLH 2004 Protocol treatment. This blog to share the experience with this Rare Disease. Hope this info will help others in this world especially in Malaysia. She had passed away on April 2011.
May 3, 2011
Ending
Finally Dr. decided not to do anything with my baby. Their plan were just to support her, Dr. did not want her to suffer more. Our side as parent after had discussed with Dr. we had to accept this decision even though it were very hard. We had to let her left us because we did not want to be selfish and made her became more suffer.
She passed away on April due to the internal bleeding.
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